Remember me? What a crazy summer, even for me.
First things first. The amyloidosis is technically cured. Because I had a liver transplant, my liver is no longer producing amyloid--the good news. Because I had a liver transplant, I have to take a ton of drugs--the bad news. Recently, I have had some of my immunosuppressants reduced. I am being "weaned" off of prednisone. I have gone from 5 mg. a day to 4 mg. a day. Actually going from 1 5 mg. pill a day to 4 1 mg. pills a day. My total number of pills a day is between 25 and 27. Throw in a shot every other week and a blood test once or twice a month and you've got my schedule!
I do feel very grateful that I'm doing that well. My kidneys are hanging in there, and that's worth a lot.
The big change this summer has been moving to Oregon. We haven't found a house to buy yet, but we are trying! We both love the small town atmosphere. Any place in town takes 10 minutes or less to get there. I don't get lost that much.
We've had lots of company this summer and my camera is full of pictures. I will be blogging more. It is far better to blog about our cute grandkids and our adventures and not about being sick!
Saturday, October 8, 2011
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