Wednesday, March 9, 2011

Amyloidosis/liver/birthday update

My meds have changed from name brand Prograf (immunosuppressant) to generic tacrolimus. With the change came more frequent blood tests. I had gone three weeks between tests, and my veins noticed the rest.
Well, Karen had a Southwest voucher lying around and thought it would be great if I came to Virginia to celebrate our birthdays. She hurriedly put together a trip and I hurried and packed. (I now call her the master manipulator, but that's another post!) I was leery about being in a closed plane full of germ soup for 6 plus hours. I was also worried about edema. Although my kidney function stinks, I don't retain fluid, except when I flew to Virginia for Randy's wedding. I really didn't want a repeat of that. But visiting the Virginia gang trumped any of that other stuff.
Back to the lab visit. My prograf level was down and my liver numbers up, so I couldn't go. I am back to weekly labs for awhile. My prograf was increased a little and we need to keep an eye on my labs so I don't do anything exciting.
This is disappointing. I think this might be the first birthday that we don't spend with each other, so we definitely have some make up to do. Any ideas? I'm thinking of a crate of peas to share this summer.

Catch up

Slacking! That's what I've been doing. Birthday season is in full swing. Happy birthday to my sweet husband. He's taken such good care of me, and with such a good attitude. He has been an example to all of us. We celebrated at home with a plethora of pizzas!
Happy birthday to dear, sweet Claire. She is one. Her brothers just love her so much--it's always exciting at her house.
Happy birthday to dear, sweet Alice. She is five and loves all things sparkly and princess! She is my helper when I make anything that could possibly have sprinkles.
Happy birthday to dear, sweet Jill. Our oldest granddaughter is eight. She is getting baptized at the end of the month. I miss her so much--they live in Texas and I don't get to see her very often. She is a good helper with her little brother and sister.
The next birthday is Karen's. Lots of birthdays!