Wednesday, March 9, 2011

Amyloidosis/liver/birthday update

My meds have changed from name brand Prograf (immunosuppressant) to generic tacrolimus. With the change came more frequent blood tests. I had gone three weeks between tests, and my veins noticed the rest.
Well, Karen had a Southwest voucher lying around and thought it would be great if I came to Virginia to celebrate our birthdays. She hurriedly put together a trip and I hurried and packed. (I now call her the master manipulator, but that's another post!) I was leery about being in a closed plane full of germ soup for 6 plus hours. I was also worried about edema. Although my kidney function stinks, I don't retain fluid, except when I flew to Virginia for Randy's wedding. I really didn't want a repeat of that. But visiting the Virginia gang trumped any of that other stuff.
Back to the lab visit. My prograf level was down and my liver numbers up, so I couldn't go. I am back to weekly labs for awhile. My prograf was increased a little and we need to keep an eye on my labs so I don't do anything exciting.
This is disappointing. I think this might be the first birthday that we don't spend with each other, so we definitely have some make up to do. Any ideas? I'm thinking of a crate of peas to share this summer.

6 comments:

  1. I think a crateful of peas to share this summer is definitely called for! :) Hoping your labs get back to some good numbers so you can visit Karen soon. Sure do love you all!!

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  2. Julie, you should come and be part of the pea party, too. You could referee or count out peas and even eat a few yourself!

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  3. Hey, count me in too! I'm all for a pea party!

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  4. You're in! Let's go for two crates!

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  5. I really miss your fun sense of humor, Cathy. It's been a while since I've seen you. Hope things are going in your favor finally! Happy birthday!

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