Thursday, July 22, 2010

Amyloidosis

Amyloidosis is a strange disease. I've seen probably about 50 with familial and 20 with primary. I also belong to a nationwide online support group with many members. The common thing between all of these people is that the amyloidosis affects each of them very differently. The protien fibrils basically destroy organs and tissues--personalized. The only way to diagnosis it is with a tissue sample--there are no blood tests or x-rays or anything. For those reasons it usually takes awhile to diagnose it after symptoms have appeared.
Tonight at 10:00 pm (9 central?) on ABC there is a TV program about a guy with amyloidosis. I've also heard there are a couple of "House" episodes that feature amy and one "Mystery Diagnosis". I'm looking forward to watching it. Might be interesting....

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